Monday, August 10, 2009

Last Night……

 

I laid on my back, watching the fan blades rotate.

In the dark, tears streamed down my cheeks, pooling in my ears.

I sighed, I grieved, I wept, I shuddered.

I reasoned with myself, “calm down dear.”

There was nothing pushing me to tears, no great motivating factor.

Other than my personal snow globe being steadily shaken.

“This is just not fair.” I said to myself.

How can one person, one little boy, have so much taken?

I feel cheated, I feel attacked, I feel pillaged, I feel beat down.

Someone stole something from me, from my family, from my son.

Only, I don’t know what they took, or whom to blame.

How do you point a finger at something you can’t even see?

I wonder if my family will ever be liberated?

Free from the what ifs, the bated breaths, the unknown?

Everyone says, “But Beth, you are so strong.”

I am not. A part of me died. I am wounded, and I am struggling.

I can no longer see the innocence in life I once did.

They have it all wrong.

My son is strong, my son is brave, my son is a gallant little soldier.

I pull in my strength from him.

He makes me appreciate what is truly important.

He gives me hope, confidence, intrepidity, and peace of mind.

He does not need my help accepting this, instead he helps me.

He holds my hand when it hurts too much.

His shining light makes me smile when tears well up in my eyes.

He holds me close when I grapple with our new reality.

He will always be my pillar of strength.

When you read this some day baby….. thank you for being nothing but yourself.

Mama loves you.

ezrasucker copy

Picture taken 3 days prior to diagnosis, I cried like a baby when I found this.

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Taken about a week ago. Same child, less hair. Isn’t he inspiring?

119 comments:

  1. I so get this post. You know I am here as always. You know Beth sometimes these late night thoughts are a way to let it all out to refresh for the nest day and battle. I will be here holding your hand.

    Ezra is such a cute little guy.

    Hugs to both of you.
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  2. He's still the same beautiful child whose pic I so proudly display on my blog.

    (((hugs and prayers)))
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  3. Praying for your strength and for peace. He is very inspiring. You both are.
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  4. he is beautiful..and its okay to cry..you are dealing with more then alot and you cant keep it all in..i pray you will find the strength in yourself to keep you going
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  5. I have been following quietly for a while, but you are inspirational...a pillar of strength. How can you not break down eventually? You would not be human if it didn't get to you...Keep doing what you're doing, which is exactly what you both need!
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  6. he's adorable and a strong warrior
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  7. still a beautiful and happy baby :-) XOXOXO
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  8. Thanks for such a beautiful post.
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  9. I have no words. This post brought me to tears. (((HUGS))) I continue to pray for your family and your brave and strong fighter, Ezra!
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  10. Good for you for letting it all out. You need too, to cry, to scream. Ezra is an amazing little boy.
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  11. You are entitled to some weak moments and feeling angry. Let it all out! I still think you and Ezra are amazing people and that you will get through this.
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  12. He is inspiring and so are you my love. You have been handed a big load of crap to deal with and you are doing it with such grace. You are in my thoughts and prayers constantly.
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  13. He's my hero! Cry when you need to, let it out and then love on that precious boy!
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  14. He is so beautiful and smiley(:
    You are so beautiful and your Husband and son are so beautiful.
    Strong is in your muscles but yours is in your heart and soul.
    Does he have a french fry?? What a cutie!!!
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  15. He is beyond inspiring. I can't wait to meet him! He is adorable.
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  16. He is so beautiful and inspiring!
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  17. He is a cutie! Such a wonderful little guy. (Hugs) and prayers daily!
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  18. He is an inpriration to all, so handsome and strong. You should be so proud of him
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  19. You are right - it just is not fair. I know it's inadequate but my prayers are with your family and Ezra
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  20. He is so beautiful. and so are you. Continuing to pray for you all.
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  21. He is gorgeous. Keeping you in my prayers.
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  22. I will be praying for your precious son and you.
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  23. I broke my neck and became paralyzed at age 15. The love and support of my parents kept me alive. Your love and faith in your son is the reason he chose you as his mother. There is great love for both of you here.
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  24. That must have been such a shock for you. My prayers are with you, Ezra and your family.

    I love that he is still beaming away! He looks like the kind of boy that kick cancer's ass alright!

    LBM xxxxx
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  25. And still just a beautiful....Are little boys beautiful or are they handsome? I'm gonna go with beautiful on this one though.
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  26. Manic Mother, I am so glad I found you here. My Step-Daughter is a survivor of ALL. We are 3 years free of treatment next month. It is the absolute test of your life to get through and get through you will. The fact that Ezra has responded so well so early is fantastic. It was the same with our little trooper! I will tonight read through all of the entrys. I don't normally post my blog on other peoples blog comments but this is our journey.. at the bottom is a little clip. It is very sad but has a happy ending! Whenever you are ready you can find it here. http://whatsthemattermary-jane.blogspot.com/2009/06/teary-one.html

    My thoughts are with you.

    MJ
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  27. Bless his heart, and yours, and your family's. (((hug)))

    Thanks for sharing this post on your SITS feature day.
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  28. Oh Beth,I stand in awe of moms like you, and yes, off course you will be as strong as you need to be. He is beautiful and I will keep your family in my prayers. Love from Africa.
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  29. He's gorgeous. My sons were born at 27 wks and my son Eli was VERY sick. I remember thinking that as a newborn unable to move, breathe or eat on his own he was stronger than me and had already taught me more than I could teach him in a lifetime. These kids are amazing and inspiring. I pray for you, that sweet boy and your family this morning. I also pray that you kick cancer's arse!!!
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  30. What a precious little boy. You are all in my thoughts and prayers!
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  31. No question about it, you are all inspiring. Peace.
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  32. Cancer is such an ugly disease. My prayers go out to you and your family.
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  33. Stopping over from SITS. God bless you, your family and especially your little man. I will pray for you!
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  34. He is inspiring (and adorable). Wishing you strength and peace.
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  35. He is the picture of inspiration. What beauty in that face.
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  36. What a woman of strength! A true woman of strength breaks down, cries, battles fear, but she never lets it keep her down. What a warrior mom you are for your son! I'm praying for you guys!
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  37. He has the sweetest little face. Just said a prayer for you guys. :)
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  38. My thoughts and prayers go out to your family. What a moving post.
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  39. Wow. Your family and your son are in my prayers and thoughts. What a sweet little boy he seems to be.
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  40. Beautiful boy ...and post.
    Will keep your family in my prayers.
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  41. I will be praying for that strength for you.
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  42. I love your posts of heart and pain and fear and love. My thoughts are always with you.
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  43. I'll keep your little guy in my thoughts. He's such a cutie.
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  44. He is a beautiful child. With a beautiful mother. I wish you and your family many blessings and love.
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  45. Stopping in from SITS, what a beautiful boy you have-you and your family are an inspiration!
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  46. Ezra and your family are in my thoughts and prayers. Thank you so much for sharing this post so that others know that they are not alone.
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  47. You are indeed a woman of strength b/c you are simply by his side. I'm sure he knows he is loved beyond measure and that's probably the most healing thing of all! Praying for many blessings for your fam!
    amber
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  48. I pray for your strength and miracle. I work in a Children's Hospital & work around these precious children. They go through so much but are such an inspiration to us all. Stay strong...my prayers are with you.
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  49. Aw, what a sweetie he is. Praying for him!
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  50. Stopping in from SITS... may you continue to find the strength you need to go on...

    Holly
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  51. He IS an inspiration, as are you! (((hugs)))
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  52. VERY inspiring! And adorable:)
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  53. Beautifully written. He will be in our prayers!
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  54. I'd say you BOTH are inspirations too ;-) What a sweet face! We'll keep you all in our prayers.

    Jamie :)
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  55. Well written! What a beautiful smile he has and I bet a beautiful spirit. In our prayers!
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  56. As I read this, I prayed for you and your family that God would give you all the strength you need and peace as you grow and go through this.
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  57. Beautiful sweet baby boy! You are loved by many, even those who do not know you!
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  58. I will be praying for you and yours
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  59. Precious, heartbreaking story all in one. No clue what to say, though I want to encourage you somehow... the only way I know how to encourage is to offer up prayers to God, who I know does care.
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  60. Keeping you in my thoughts & prayers.
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  61. What a beautiful post and a beautiful child! i will add your to my prayers for strength! You are a beautiful writer
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  62. What an angel. Lots of hope and good wishes sent your way.
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  63. I wish all of us bloggers could make a circle around you...thousands of women deep to protect both you and Ezra. We may not be able to protect you from this horrible ordeal. But please picture us circling you with loving thoughts and hugs.
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  64. I am speechless...there are no words really. count me as a member of your prayer troupe.
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  65. Ezra sure does look strong and happy. He knows he has a Mom that loves him. We all know it too.
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  66. Lots of prayers sent your way! He has such a great smile!
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  67. I have been reading your posts for a while now, but have never known what to say. I have Ezra's photo on my sidebar, I see his beautiful face everyday, and I pray for your family every day.
    I am so glad you are the FB today, maybe with all the prayers that are generated, the good wishes will help.
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  68. I am always amazed at the resilience of children facing this disease. It IS so unfair, you are right about that, but you know, I can see the joy in his eyes and he is all about living in the present and loving life. We can all learn from that.

    Happy feature day!
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  69. He is AMAZING!! I can't even imagine what you have gone through. I panic when my son gets an ear ache. I even cried when my new kitty had some blood in his poop which ended up to be nothing. I envy your strength and only wish I could be a fraction of that strong.
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  70. Hey Girl,

    Wow what an amazing, reality check, inspiring story this is.

    Your boy is beautiful.

    I will keep you in my prayers...actually....Jesus I just ask you to give Beth strength and understanding. Think you for her little boy and the strength you have given him. Bless them during this hard and trying time. Show them that you care for every detail. Amen

    Blessing to you and your family.
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  71. You are an inspiration and so is Ezra. What an amazing little boy.
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  72. Sending my positive energy your way - looks like your little one has plenty of that on his own!
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  73. I can't imagine the pain your family must be in. You have my prayers...and I made a small donation. Wish it could be more!
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  74. Such a sweet little guy! Lots of prayers from our family to yours!
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  75. You make each other strong. My prayers are with you.
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  76. Sigh. I cannot imagine what you must be going through. It must be so incredibly tough and it just goes to show how amazing children are that they can help us through such an incredibly difficult time. It just shows how much closer they are to God. :)

    Praying for you all.
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  77. ugly crying over here.

    When my son was hovering on the brink, I wanted to SMACK everyone who told me how strong I was... I felt like I could crumble to a million pieces.
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  78. I read your updates on Ezra & may have even commented on this post, so Happy SITS Day!!
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  79. He is beautiful and it takes a lot more strength to feel the full range than it does to put on a brave face.
    SITS girl
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  80. This is very moving. Too many kids and their families are suffering with these diseases! Certainly makes me count my blessings! My college roommate's 7 year old son has just had a relapse of Neuroblastoma, which they realize is not curable after relapse and another close friend has a 5 year old who is living with Fanconi Anemia. I am sure that your statements above sum up just how all of the moms of kids like this feel. Thanks for sharing.
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  81. This brought tears to my eyes. God bless you and your baby boy - I just prayed for his full recovery.
    (((Hugs)))
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  82. He has the most beautiful eyes. :hugs:
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  83. Your family is inspirational. Good luck with your battle.

    Stopping by from SITs
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  84. I pray for strength, his and yours and healing.
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  85. Crying for you, Mama... Sending you strength from Seattle!
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  86. Oh how lucky you are to have each other.
    Sending you so much love.
    I am in awe of your strength.
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  87. I cried with you just now. You are so lucky to have each other. You are definitely blessings to each other from God.
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  88. Our strengths come and go don't they? Your baby boy has no other choice but to be strong. Little boys thrive on that stuff! :o) You be strong when you see fit, other times let the pain come out. I say we were given tear ducts for a reason so you might as well get some use out of em when you need to. Just keep swimming...just keep swimming...

    My best, Lynn
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  89. Very moving post, thank you for sharing. My thoughts and prayers are with you and your family.
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  90. I'm sorry you are going through this. But believe it or not - the Lord makes weak things become stronger. So even if you don't feel strong, you are getting stronger through all of this - even if you can't see the purpose in it. My thoughts & prayers are with you SITSa.
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  91. I can't even begin. Thinking of you from across the pond. x
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  92. prayers and good vibes to you and that sweet precious boy. your struggle makes all of us appreciate our loved ones even more. thanks for sharing
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  93. This just isn't fair. :(

    I'm so sorry.
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  94. He's so precious! I'm so sorry you are having to go through this....
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  95. I just couldn't even imagine...I just hate for families to suffer like this. Nothing bad should happen to kids ever. It should be a rule. Because you're right. It's not fair.
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  96. He is so beautiful. I will keep him and your entire family in my prayers!
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  97. I'm sorry your family has to go through this. Stay strong and continue to have faith.

    Stopping by from SITS


    "Once you choose hope, anything's possible." ~ Christopher Reeve
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  98. This was an amazing story. I send my hugs to your family.
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  99. Your post made me tear up.
    Although our recent discoveries of my son, they are not life threatening. I have often had the same thoughts running through my head as you just posted here.

    You AND Ezra are both inspirational.
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  100. Stopping by from SITS. Keep fighting. It certainly isn't fair. He is an unbelievably gorgeous boy with hair and without!
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  101. It's not fair. But I'll keep you in my thoughts and prayers...
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  102. Stopping in from SITS -- wow, Ezra is a beautiful boy. I'm praying for him, for you, and for your family.
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  103. i like your blog very much! i'm not a mum yet but hope to become it soon.
    your boy is just lovely...
    many hugs, justyna
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  104. What a beautiful little boy.
    My prayers are with you and him.
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  105. I am so sorry for what you are all battling. Prayers coming your way!!!!!!!!!!!!!!!!!!!!!!!!!!! He is a beautiful boy.
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  106. You express your feelings so well. Sometimes it helps to just cry or even go somewhere (like in your car alone) and SCREAM! Hope everything works out well for Ezra and he can beat this! I'll certainly include your family in my prayers--[Big HUG for all of you!]

    Visiting from SITS.
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  107. You are just so brave to be going through all this. Good friends of ours are battling for their child too and it just breaks my heart. Keeping you in my prayers.
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  108. Very touching and all your boys are gorgeous. I am praying for your family. ((hugs))
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  109. God bless you and your family and your darling little boy...and know that one more praying soul is among your ranks!
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