Thursday, September 24, 2009

Random Ramblings

I wish I could tell you all that it gets easier with time.

I wish I could tell you my anxiety and pain, roll off of my back now, that they have become akin to my being, one with my soul.

I wish I could tell you this, so that if your child got stricken with a deplorable life threatening ailment,  I could at least offer solace.

But I will not distort my truth.

It doesn’t get any easier. Certain parts, perhaps, but as a whole it has not gotten any less complex.

It never gets any easier to restrain my baby as people poke him with needles and prod him with machines.

It never gets any easier to watch him cry, or to listen to those heart wrenching screams of his.

It never gets any easier to look into his pleading eyes, and not be able to answer those pleas.

It doesn’t get any easier to watch him hooked up to an IV pole with toxins dripping into his bloodstream, contaminating him for a cure.

I wish I could fix this, I yearn to fix this.

I wish I could heal him, mend him up, and make him a thriving two year old again.

I wish I didn’t know about spinal taps, chemotherapy, and blood counts. How I hate my new found knowledge.

I wish things could go back to how they were before.

When my biggest concerns were getting my boys through the day, not keeping one of them alive.

Just when I think I have accepted Ezra’s leukemia, I fall apart again.

I find something new to vex over.

I have so much underlying anxiety, I don’t even know most of it exists.

I am no longer just a mother, and a wife.

I am saving a life, I am on constant vigil.

I am just so fearful of the unknown, its eating me alive.

In the grand scheme of things, I know he is going to be fine.

I know he will get a gold star in cancer ass kicking.

I know we will beat this.

The cure rate is phenomenal for his type of leukemia, its just that small grey area that worries me. 

I have moments where I emotionally berate myself, because I feel as his mother, I should be able to fix this.

And I can’t.

I can’t make it better.

My love alone won’t cure him.

That my friends, is one of the hardest parts to accept.

I can’t wrap myself around him, hold him close and cure him with my kisses.

I can only care for him as best as I possibly can, and have faith that his doctors know how to cure his tainted blood.

I thought I knew pain and heartache.

I thought we were old friends.

I was disconcerted when that friend betrayed me. I didn’t think I  could possibly be worthy of so much remorse in one lifetime.

But such is life.

Horrid things happen to really virtuous people. Amazing things happen to really immoral people.

Babies get cancer and morons win the lottery.

While fairness is a commendable notion in theory, it is just not plausible.

Life is not fair, it does not play favorites.

Revel in your bliss, count your blessings each and every day, you never know when life may throw you a deviant curve ball.

I can not stress it enough…life is too short!

Live with no regrets. Love freely. Flourish in everything you do.

 

 

© Copyright 2009 Manic Mother




36 comments:

My Bottle's Up! said...

oh my sweet... wow. always, always, ALWAYS in my thoughts.

DysFUNctional Mom said...

I lost an old friend to cancer today. I just saw this quote on her facebook page: "Life is short, say what's on your mind!"
I'm so sorry you're going through all of this, I can't imagine the emotional toll it takes.

WPMomOf2 (jen) said...

I can only imagine the fear and anxiety..I think of you and your family often.

Ter said...

((hugs)) I relate in so many ways. Life is so unfair sometimes.

Bethany said...

Praying for your family...always!

Veronica Lee said...

Praying and thinking of your family ...always!!

((hugs))

kimert said...

I'm still thinking of and praying for you!! I wish I had words to take away the pain that I know you must feel day in and day out. My heart breaks for you. Stay strong! A million hugs for you and sweet E!

Nichol said...

Oh honey always thinking of you. Hugs for both of you (hugs)

Mighty M said...

I hate that you are all going through this!!! Thinking of you .....

Household6 said...

Your blog brought me to tears. My heart goes out to you and your family. I don't know you personally, but I pray for all of you and will continue to do so until your little one is healthy again!! YOU ALL CAN BEAT THIS!

Rachael said...

God Bless you.....you are in my prayers. Your words are very meaningful and so honest, you are an amazing woman!

Tricia Moran said...

Your family and little one are in my prayers every day. This was so well written and at the same time I am sorry that you had to write it. You are amazing. Your little boy is drawing from your strength. You inspire me to appreciate the little things more. Thank you. :)

Amy B said...

Do I need to say anything more then I know..I get it..I care and I am HERE.

foxy said...

I wish i could give you a big ole HUG right now! My prayers are with your sweet family today and everyday.

Tiffany Lockette said...

I feel your pain in your words you type. I wish I could wrap my arms around both of you and tell you everything was going to be ok. Keep being strong for Ezra, that is the best thing you can do for him right now. Praying for you guys.

suZen said...

Huge hugs to you! Don't berate yourself honey. You are not some tin soldier marching thru each day carrying this whole ordeal around in military precision! You're a mom. There was never a more emotionially charged being ever created. It's the contrasts, the up days and down days that is so exhausting. Prayers for your strength are on my heart's list every day!

Penny Williams said...

I think of your sweet boy often and I am amazed by the bravery of you and your little one. It is most unfair. You are his hero though...supermom in every way. Keep fighting your way to the other side of this! You WILL get there.

Tiki Kei said...

Your strength and candor astound me. You are going through such major turmoil, yet you don't let your other interests flounder. This is wise of you. It helps show your little ones that life is still worth living. May God Bless you all.

Heather said...

I can appreciate this post dearly, as we lost my baby cousin at 3 years old a month ago to a car accident. You are right, life isn't fair, and my aunt and uncle haven't been able to pick themselves up off the ground yet. If there is such a thing as a silver linig I suppose it's the impact it has on everyone else. I think differently now that my family has gone through this tragedy, and I do consciously make an effor to live my days to the fullest. Bad days still exist, but at the end of every day I truly take time and just appreciate.

I appreciate you, for sharing your fears and vulnerability. That takes a lot of strength. God bless you guys, I hope you have a nice weekend.

Aidan Donnelley Rowley said...

"But I will not distort my truth."

Never even contemplate distorting your truth. Your ramblings aren't random. They are regally raw and lovely. Your words here are, as always, insightful and inspiring.

Two Normal Moms said...

Just said a prayer for you! You may not be able to kiss it away, but you feed him strength with you love, your presence, and your belief that he will win. Live each day the best you can.
***Ally

Michelle said...

I don't know you, and I'm half a world away, but please know that your life touches mine and that somewhere in a small corner of Africa you and yours have a place in someone's prayers...

ModernMom said...

This is a very powerful post! Through my teary eyes I send you prayers and hugs...

Bill and Lorie Shewbridge said...

I wish I had the words... {{{ Hugs }}}
You are all in my thoughts forever and always.

Jennifer said...

Honestly? I want to throw up that you're going through this. I cannot imagine the incredible amount of strength it takes for you to keep steady for your son. I wish, I wish, I wish there was a way that we could help it go away over night. Thinking of you and praying for that stupid cancer to leave Ezra!!!

Lifes A Dance said...

this is such an honest look into your feelings. I am now following your blog. You are an inspiration to others, even ones that you do not even know. I look forward to seeing Ezra's progress and will be praying for him daily

Little Miss Baker said...

I love reading your words. Please keep it up Beth! You are an inspiration to many many many people :)

Staci said...

Beautifully stated. Hang in there. I'm keeping you and Ezra in my prayers.

Angela :-) said...

http://teambettendorf.com/

Check out this blog & contact them for information on a healthier way to fight cancer.

I used to follow their blog and just stumbled across yours.

God Bless!
Angela :-)

The Blushing Hostess said...

I am praying for you. I am so, so sorry.

EllaBellaMozzarella said...

Hugs to you! You are an inspiration...I am truly in awe at the amount of strength you possess to face this journey with such courage & wisdom. Your family is in my thoughts!

I would love to pass on an award to you..you can find it at my blog http://ellabellamozzarella.blogspot.com/

tara said...

i hear you ... i wish i could wish this all away for you. hugs.

joyfulgirl said...

Such deeply rooted, raw and emotional words. Thank you for your honesty and your love for little Ezra. He is in our prayers in California.

Jennifer Juniper said...

Though there is nothing I can say to ease your struggle, know that your words hit home to me. They reminded me to be thankful for what I have and hug my boys a little tighter. Thank you for sharing this for SITS Saturday Share Fest.

The Mommyologist said...

What a beautiful post. I will say a special prayer for your family this Christmas for sure.

Karen said...

I cannot imagine what you're going through and how hard it is. But your little guy is lucky to have such a strong mom that is helping him fight every step of the way.

I hope you had a Merry Christmas!

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