So Far, So Good

The week has gone really great so far. Monday Ezra was at clinic from 8-3, he was such a trooper. He was hooked up to an IV pole that whole time. He has far more patience than any little person should ever have to have.

Tuesday he went in for a spinal tap with chemo. His spinal fluid came back clean (free of cancer cells). Before Ezra was taken back for the procedure he was watching Thomas (the new obsession). Usually after a spinal tap he sleeps 20 minutes or so. Not this time, apparently he sat straight up and said “choo-choo”. I thought that was too cute.

Wednesday and Thursday we went in to the clinic to get more chemo, but they were short little appointments, just quick pushes of chemo into his port. He has also been receiving oral chemo at home every night.

We are done for the week with clinic appointments, we go back M, T, Th, and F next week.

He looks sick more so now. No hair really at all, and so pale. I get “the look” now from adults. If you have a child that looks at all different, I don’t need to explain “the look”. I used to just avoid eye contact so I didn’t have to see the look, now I glare back.

Really need that shirt that says “Don’t stare, say a prayer.”

Ezra has been his boisterous, lovable little self. No side effects so far. We are so close to long term maintenance!